Perfil dos hemofílicos de uma associação de pacientes de Brasília – DF, Brasil

Authors

  • Denise Rodrigues Holsbach Sartorelo
  • Daniel Benevides Ferreira
  • Larissa Castro Souza
  • Millena da Luz Soares
  • Leonardo Costa Pereira
  • Kerolyn Ramos Garcia

Keywords:

Hemophilia, Coagulation disorder, Prophylaxis

Abstract

Objective: To characterize the hemophiliacs profile linked to a patients association in Brasília - DF, Brazil. Method: Cross-cut survey with convenience sampling, carried out with 49 male hemophiliacs adults, linked to the Association of Volunteers, Researchers and People with Coagulopathies (AJUDE-C). The study was approved by the Ethics Committee in Research with Human Beings.The Sociodemographic and clinical information was collected through a form. The normality of the data was evaluated using the Shapiro-Wilk test. Results: Were evaluated 49 adult male hemophiliacs with an avarage  37 ± 8.4 years. 43% were in the 30-39 age range. The brown race predominated (49%), single marital status (61%), in work activity (57%) and 53% lived less than 30 km from the treatment place. Clinical prevalence hemophilia A (79.6%), severe disease (77.6%) and the use of secondary prophylaxis (75.5%). Conclusion: Most of the sample is in work activity. This fact can be explained by the administration of secondary prophylaxis and proximity between their residence / treatment place. This keeps the clotting factors at safe levels, and provids quick assistance to emergencies cases, generating greater autonomy in this population.

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Published

2021-02-04

How to Cite

Denise Rodrigues Holsbach Sartorelo, Ferreira, D. B., Souza, L. C., Soares, M. da L., Pereira, L. C., & Garcia, K. R. (2021). Perfil dos hemofílicos de uma associação de pacientes de Brasília – DF, Brasil. Revista De Divulgação Científica Sena Aires, 10(1), 73–81. Retrieved from https://rdcsa.emnuvens.com.br/revista/article/view/482

Issue

Vol. 10 No. 1 (2021): REVISA

Section

Original Paper

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