Caregivers' understanding of palliative care offered to their family members

Authors

  • Raíssa de Aquino Rodrigues Ferreira
  • Walquiria Lene dos Santos
  • Maria Liz Cunha de Oliveira

Keywords:

Caregivers, Palliative care, Comprehension

Abstract

Objective: to analyze the production of knowledge on caregivers' understanding of the concept of palliative care from 2019 to 2023. Method: A scoping review was carried out using the PUBMED, COCHRANE, BVS e SCIELO platforms between July and October 2023. The final sample included 5 articles. Results: The studies revealed a gap in caregivers' knowledge about the concept of palliative care, both nationally and internationally. They also highlighted the impact of knowledge about palliative care on the quality of care offered to patients. Conclusion: further research is needed to elucidate how the understanding of palliative care is formed by both caregivers and patients, to contribute to better care practices, as well as to foster more effective public policies in this area.

References

- WHO. Definition of palliative care. 2020. Disponível em:

https://www.who.int/news-room/fact-sheets/detail/palliative-care. Acesso em: 14 abr. Geneva.2024.

- Radbruch L L L, Knaul F, et al. Redefining palliative care: A new International Hospice and Palliative Care IHPC consensus-based definition. Journal of Pain and Symptom Management. 2020;60(4):754–764.

-Silveira M R M D, Forte, D N. Palliative care and neurology: a path to neuropalliativism. Arquivos de Neuro-Psiquiatria, 2022. 80, 328-335.

- Cavalcanti A E S, Netto J J M, Martins K M C, Rodrigues, A R M, Goyanna N F, Aragão O C. Percepção de cuidadores familiares sobre cuidados paliativos. Arquivos de Ciências da Saúde. 2018 25(1), 24-28. https://doi.org/10.17696/2318-3691.25.1.2018.685

-Kupeli N, Sampson, E L, Leavey, G, Harrington J, Davis S, Candy, B, & Moore, K. Context, mechanisms and outcomes in end-of-life care for people with advanced dementia: family carers perspective. BMC Palliative Care, 2019, 18(1), 1-15.

-Shah S. et al. Perceptions, knowledge and attitudes towards the concept and approach of palliative care amongst caregivers: a cross-sectional survey in Karachi, Pakistan. BMC palliative care, [S. l.], v. 19, n. 1, p. 180, 26 nov. 2020.

-Haan M M, Olthuis G, van Gurp J L P. Feeling called to care: a qualitative interview study on normativity in family caregivers’ experiences in Dutch home settings in a palliative care context. BMC Palliat Care 2021; 20(1): 1–15.

- Westerlund C, Tishelman C, Benkel I, et al. Public awareness of palliative care in Sweden. Scand J Public Health. 2018;46(4):478–487.

- Braga, CO, Machado, CS, Fernanda Guedes Afiune. A percepção da família sobre cuidados paliativos. Revista Científica Da Escola Estadual De Saúde Pública De Goiás" Cândido Santiago" 7 (2021): e7000041-e7000041.

- McIlfatrick S, Slater P, Beck E, et al. Examining public knowledge, attitudes and perceptions towards palliative care: a mixed method sequential study. BMC Palliat Care 2021;20:44.

- Claxton-Oldfield S, Claxton-Oldfield J, Rishchynski G. Understanding of the term “palliative care”: a Canadian survey. Am J Hosp Palliat Care. 2004;21(2):105–110.

- MacLeod, R D, Thompson, R, Fisher, J W, Mayo, K, Newman, N , & Wilson, D M. New Zealanders’ knowledge of palliative care and hospice services. 2012.NZ Med J, 125(1348), 51-60.

-McIlfatrick S, Hasson F, McLaughlin D, et al. Public awareness and attitudes toward palliative care in Northern Ireland. BMC Palliat Care 2013;12:34.

-Peters MDJ, Godfrey C, Mclnerney P, Munn Z, Tricco AC, Khalil H. Chapter 11: Scoping reviews. In: Aromataris E, Munn Z, editors. JBI Manual for Evidence Synthesis [internet]. Adelaide: JBI, 2020 [cited 2021 Aug 20]. Available from: https://synthesismanual.jbi.global

- Ouzzani M, Hammady H, Fedorowicz Z, Elmagarmid A. Rayyan-a web and mobile app for systematic reviews. Syst Rev. 2016;5:210.

- Tricco AC, Lillie E, Zarin W, O’Brien KK, Colquhoun H, Levac D, et al. PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation. Angew Chemie Int Ed 6(11), 951–952. 1967.

-Prisma. 2020 – checklist para relatar uma revisão sistemática [Publicado por 19 de Setembro de 2022 ]. Available at: https://www.prisma-statement.org/https://eme.cochrane.org/prisma-2020-checklist-para-relatar-uma-revisao-sistematica/

- Silva S É D D, Santos A L D, Paranhos S B, Tavares R D S, Costa JL D; Sousa Y M D. Representações sociais de familiares de pacientes pediátricos fora de possibilidades terapêuticas atuais. Rev. pesqui. cuid. fundam.(Online), 2019. 641-647.

-Paul A, Fernandes E. Experiences of caregivers in a home-based palliative care model a qualitative study. Indian J Palliat Care. 2020;26:306–11. doi: 10.4103/IJPC.IJPC_154_19.

-Ferreira, E C S. et al. Percepção de cuidadores familiares de pacientes idosos sobre cuidados paliativos. Rev. enferm. UFPE on line, [S. l.], ["Ferreira, Erica Conceição da Silva; Hospital das Clínicas da Universidade Federal de Minas Gerais. Belo Horizonte (MG). BR", “Silva, Silmar Maria da; Universidade Federal de Minas Gerais/UFMG. Belo Horizonte (MG). BR”, “Quispe Mendoza, Isabel Yovana; Universidade Federal de Minas Gerais/UFMG. Belo Horizonte (MG). BR”, “Pereira, Fabiano Moraes; Hospital das Clínicas da Universidade Federal de Minas Gerais. Belo Horizonte (MG). BR”, “Soares, Rosimeire Angela de Queiroz; Faculdade de Ciências Médicas da Santa Casa de São Paulo/FCMSCSP. 2021.São Paulo (SP). BR”], v. 15, n. 2, p. [1-13], jul.

- Morris, S M, King, C, Turner, M; Payne, S. Family carers providing support to a person dying in the home setting: a narrative literature review. Palliative medicine, 2015, 29(6), 487-495.

-Cunha, AS., Pitombeira, J S., & Panzetti, T M.N. Cuidado paliativo oncológico: percepção dos cuidadores. Journal of Health & Biological Sciences, 2018. 6(4), 383-390.

-Dionne-Odom JN Ornstein KA Kent EE What do family caregivers know about palliative care? Results from a national survey. Palliat Support Care. 2019; 17: 643-649

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Published

2024-09-05

How to Cite

Ferreira, R. de A. R., Santos, W. L. dos, & Oliveira, M. L. C. de. (2024). Caregivers’ understanding of palliative care offered to their family members. Revista De Divulgação Científica Sena Aires, 13(3), 672–683. Retrieved from https://rdcsa.emnuvens.com.br/revista/article/view/262

Issue

Vol. 13 No. 3 (2024): REVISA

Section

Literature Review

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Copyright (c) 2024 Revista de Divulgação Científica Sena Aires

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