Palliative care for elderly people with Alzheimr’s Disease

Authors

  • Luane Silva de Jesus
  • Ana Carolaine de Souza Batista
  • Rudval Souza da Silva
  • Aila Roberta Passos Pereira
  • Ana Raquel Lima Peralva de Almeida
  • Manuela Bastos Alves

Keywords:

Palliative care, Alzheimer’s disease, Elderly

Abstract

Objective: To carry out an integrative literature review on access to palliative care for elderly people with Alzheimer's disease. Method: This is an integrative review using the descriptors "Alzheimer's disease", "palliative care" and "elderly" carried out in Medline, Lilacs, Binacis and Ibecs databases, with a temporary cut of 10 years (2012-2022). Results: 158 articles were found, of which 148 were excluded for not meeting the research criteria, with 10 articles selected to compose this study. Two central points were identified involving the barriers faced by the family in accessing palliative care for elderly people with Alzheimer's Disease, respectively: The lack of knowledge of Alzheimer's Disease as a progressive and irreversible disease that leads to death, therefore with implementation of palliative care and the lack of formal palliative care services for elderly people with AD, especially for those in long-term care facilities. Conclusion: This research was able to understand the challenges and limitations of access of elderly people with Alzheimer's disease to Palliative Care, ranging from the central points obtained in the results to others involving limited knowledge and discussions on the subject.

References

World Health Organization [homepage na internet]. Planning and implementing palliative care services: a guide for programme managers. 2016 [cited Aug 5, 2022]. Available from: https://apps.who.int/iris/bitstream/handle/10665/250584/9789241565417-eng.pdf.

Gomes ALZ, Othero MB. Cuidados Paliativos. Estud Av. 2016; 30(88):155-66. doi: https://doi.org/10.1590/S0103-40142016.30880011.

Du Boulay, S. Changing the face of death: The story of Cicely Saunders. 2.ed. Great Britain: Brightsea Press. 2007.

Matsumoto DY. Cuidados Paliativos: conceito, fundamentos e princípios. In: Carvalho RT, Parsons HÁ. Manual de Cuidados Paliativos. São Paulo: Academia Nacional de Cuidados Paliativos (ANCP); 2012. p. 23-30.

Costa ÁP, Poles K, Silva AE. Palliative care education: experience of medical and nursing students. Interface. 2016; 20(59):1041-52. doi: https://doi.org/10.1590/1807-57622015.0774.

Castro MPR, Antunes GC, Marcon LMP, Andrade LS, Ruckel S, Andrade VLA. Euthanasia and assisted suicide in western countries: a systematic review. Rev Bioét. 2016; 24(2):355-67. doi: https://doi.org/10.1590/1983-80422016242136.

Reis RD, Andrade AMG, Silva JV. Cuidados paliativos a pessoa idosa com demência: Sentimentos emergentes com reflexões bioéticas.

Rev Iberoam Bioet. 2020; (12):01-11. doi: https://doi.org/10.14422/rib.i12.y2020.006.

Alzheimer’s Association. 2018 Alzheimer’s disease facts and figures. Alzheimer's & Dementia. 2018 [cited Aug 8, 2022]; 14(3):367-429. Available from: https://www.alz.org/media/homeoffice/facts%20and%20figures/facts-and-figures.pdf.

World Health Organization [homepage da internet]. Dementia. Signals and symptons. 2021 [cited Jun 5, 2022]. Available from: https://www.who.int/news-room/fact-sheets/detail/dementia.

Tolson D, Holmerova I, Macrae R, Waugh A, Hvalič-Touzery S, Abreu W, et al. Improving advanced dementia care: na interprofissional paliares learning framework. J Am Med Dir Assoc. 2017; 18(7):561-563. doi: https://doi.org/10.1016/j.jamda.2017.03.014.

Queiroz RB, Zaccara AAL, Moreira MADM, Silva LM, Costa SFG, Silva AO. Palliative care and Alzheimer: neurologists’ conceptions. Rev Enferm UERJ. 2014; 22(5):686-92. doi: http://dx.doi.org/10.12957/reuerj.2014.15549.

Silva EP, Sudigursky D. Conceptions about palliative care: literature review. Acta Paul Enferm. 2008; 21(3):504-8. doi: https://doi.org/10.1590/S0103-21002008000300020.

Associação Brasileira de Cuidados Paliativos [homepage da internet]. São Paulo: Associação Brasileira de Cuidados Paliativos, 2011-2015 [cited Dec 16, 2022]. Available from: http://www.cuidadospaliativos.com.br/site/inicio.php.

Ercole FF, Melo LS, Alcoforado CLGC. Integrative Review versus Systematic Review. Reme, rev min enferm. 2014; 18(1):12-14. doi: http://dx.doi.org/10.5935/1415-2762.20140001.

Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA Statement. PloS Med. 2009; 6(6):e1000097. doi: https://doi.org/10.1371/journal.pmed.1000097.

Mallmann MB, Doring M. Avaliação neuropsicológica e comprometimento cognitivo leve no idoso. In: Doring M, Moretto CF, Diehl AA. Envelhecimento Humano aspectos populacionais e de saúde na contemporaneidade. Passo Fundo: Universidade de Passo Fundo; 2017 [cited Nov 12, 2022]. doi: https://unigra.com.br/arquivos/envelhecimento-humano:-aspectos-populacionais-e-de-saude-na-contemporaneidade-.pdf.

World Health Organization. Global Atlas of Palliative Care at the End of Life. Worldwide Palliative Care Alliance. 2014 [cited Nov 12, 2022]. Available from: https://www.who.int/ncds/management/palliative-care/palliative-care-atlas/en/.

Hendriks SA, Smalbrugge M, Hertogh CMPM, Steen JTVD. Dying with dementia: symptoms, treatment, and quality of life in the last week of life. J Pain Symptom Manage. 2013. doi: https://doi.org/10.1016/j.jpainsymman.2013.05.015.

Faes K, Cohen J, Annemans L. Resource Use During the Last 6 Months of Life of Individuals Dying with and of Alzheimer's Disease. J Am Geriatr Soc. 2018; 66(5):879-885. doi: https://doi.org/10.1111/jgs.15287.

Gentry MT, Clark MM, Ryan SM, Rummans TA, Lapid MI. Dementia palliative care in the acute psychiatric hospital: A feasibility study. Perspect Psychiatr Care. 2020; 56(3):593-597. doi: https://doi.org/10.1111/ppc.12473.

Gusmano M. End-of-life care for patients with dementia in the United States: institutional realities. Health econ policy law. 2012; 7(4):485-498. doi: https://doi.org/10.1017/S1744133112000266.

Branco DNS. Fatores que Condicionam a Acessibilidade aos Cuidados Paliativos dos Doentes com Demência na Perspectiva dos Neurologistas e Paliativistas. Lisboa. Dissertação [Mestrado em Cuidados Paliativos] - Universidade Católica Portuguesa; 2019 [cited Nov 2, 2022]. Available from: https://repositorio.ucp.pt/bitstream/10400.14/32311/1/Dina%20Branco_Disserta%c3%a7%c3%a3o.pdf.

Pinto LB, Tabaldi JB. Fatores limitantes no cuidado/cuidar na Doença de Alzheimer. Memorialidades. 2015 [cited Nov 3, 2022]; 12(23 e 24):59-87. Available from: http://periodicos.uesc.br/index.php/memorialidades/article/view/1306.

Santos EAA. Barreiras Associadas aos Cuidados na Demência: uma revisão da literatura. Geriatr Gerontol Aging. 2018; 12(2):105-12. doi: http://doi.org/10.5327/Z2447-211520181800014.

Lóss JCS, Teixeira FLF, Cabral AJ, Chaguri Junior JC. Do Tratamento Clínico ao Asilar - um relato de experiência sobre o envelhecimento e as demências no idoso institucionalizado. Revista Transformar. 2019 [cited Nov 10, 2022]; 13(1): 785-796. Available from: http://www.fsj.edu.br/transformar/index.php/transformar/article/view/337.

Kuhn DR, Forrest JM. Palliative care for advanced dementia: a pilot project in 2 nursing homes. Am j alzheimers dis other demen. 2012; 27(1):33-40. doi: https://doi.org/10.1177/1533317511432732.

Mitchell SL. Advanced Dementia. N Engl J Med. 2015; 372:2533-2540. doi: http://doi.org/10.1056/NEJMcp1412652.

Jennings LA, Turner M, Keebler C, Burton CH, Romero T, Wenger NS, et al. The Effect of a Comprehensive Dementia Care Management Program on End-of-Life Care. J Am Geriatr Soc. 2019; 67(3):443-448. doi: https://doi.org/10.1111/jgs.15769.

Wowchuk SM, Mcclement S, Bond Jr J. The challenge of providing palliative care in the nursing home. Int j palliat nurs. 2013; 13(7). doi: https://doi.org/10.12968/ijpn.2007.13.7.24346.

Fernandes R, Batista JMS, Nascimento KF, Amaro MLM. Demandas Para o Enfermeiro no Cuidado Paliativo em Instituições de Longa Permanência Geriátrica. Rev Gest Saúde. 2022; 24(1):15-29. doi: https://doi.org/10.17648/1984-8153-rgs-v1n24-2.

Clos MB, Grossi PK. Challenges for dignified care in homes for the aged. Rev Bioét. 2016; 24(2):395-406. doi: https://doi.org/10.1590/1983-80422016242140.

Schaefer F. The importance of the implementation of palliative care in the brazilian national health system. Rev Direito Sanit. 2020; 20(3):26-50. doi: https://doi.org/10.11606/issn.2316-9044.v20i3p26-50.

Volicer L, Simard J. Palliative care and quality of life for people with dementia: medical and psychosocial interventions. Int psychogeriatr. 2015; 27(10):1623-1634. doi: https://doi.org/10.1017/S1041610214002713.

Wladkowski SP. Live Discharge from Hospice and the Grief Experience of Dementia Caregivers. J Soc Work End Life Palliat Care. 2016; 12(1-2):47-62. doi: https://doi.org/10.1080/15524256.2016.1156600.

Glass AP. Family Caregiving and the Site of Care: Four Narratives About End-of-Life Care for Individuals with Dementia. J Soc Work End Life Palliat Care. 2016; 12(1-2):23-46. doi: https://doi.org/10.1080/15524256.2016.1156605.

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Published

2024-06-04

How to Cite

Jesus, L. S. de, Batista, A. C. de S., Silva, R. S. da, Pereira, A. R. P., Almeida, A. R. L. P. de, & Alves, M. B. (2024). Palliative care for elderly people with Alzheimr’s Disease. Revista De Divulgação Científica Sena Aires, 13(2), 392–405. Retrieved from https://rdcsa.emnuvens.com.br/revista/article/view/154

Issue

Vol. 13 No. 2 (2024): REVISA

Section

Literature Review

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